2014 Regional Meeting

Over 100 stakeholders participated in the 2014 Region 4 Midwest Genetics Collaborative Meeting at the Henry Center in East Lansing on April 29-May 1. State public health, newborn screening laboratories, genetic service providers, primary care, and families of children with a genetic condition from Illinois, Indiana, Kentucky, Michigan, Minnesota, Ohio and Wisconsin work collaboratively to provide quality genetic and newborn screening services to families.

The Region 4 partners meet via teleconference throughout the year to address regional priorities. The face-to-face meeting provides stakeholders an opportunity to share best practices and move the regional efforts forward toward accomplishing the current goals:

  • Effective follow-up for children with heritable disorders,
  • Improve care coordination and access to genetic services,
  • Increase the number of children with genetic conditions who receive quality genetic services, and
  • Timely adoption and implementation of new conditions on the Recommended Uniform Screening Panel for newborn screening test.

Plenary panel discussions with multiple stakeholder perspectives were led by regional experts and national partners including the following topics: Newborn Screening Reimbursement Funding and Payment Structures, Use & Storage of Residual Dried Blood Spots, and Communicating Positive NBS Results to Families. Joan Scott, Genetic Services Branch Chief for the Division of Services for Children with Special Healthcare Needs, Maternal and Child Health Bureau presented an update from the project funder, Health Resources and Services Administration.

2014 Regional Meeting Archive