Select a different role:
Responsibilities: Provide framework for promoting child’s growth and development and managing the health condition
- Initiate the working alliance
- Identify & acknowledge families values, priorities & affirm strengths
- Develop plan based on shared goals
Responsibilities: Support evolving working alliance with parents and growing child/young adult
- Inform and empower parents
- Promote parent effectiveness
- Give up need to “know best”
- Maintain high expectations for child and future
Provide anticipatory guidance re: adulthood, work, autonomy, independent living
- Encourage decision making to parents & youth
- Establish separate relationship with youth
- Provide developmentally appropriate support
Professional serves as a resource
- Solicit information about how condition is affecting everyday life
- Identify formal and informal supports
- Identify cognitive based opportunities
- Promote patient autonomy
This section provides information for health care providers assisting children and young adults with transition. The videos, information and resources you will find here are specifically chosen to help you assist these children and young adults as they make the move from childhood into adulthood. The role of physicians, care coordinators and other healthcare providers is significant. You are often a key source of information and assistance. You play a principle role in shaping and influencing the child or young adult’s relationship with future providers, and often help set the tone for fostering independence and autonomy. We hope you will find this information helpful in your work with children and young adults.
- Transition Planning for Adolescents with Special Health Care Needs and Disabilities: A Guide for Health Care Providers.
This resource guide is written for health care providers who care for children with special health care needs. The guide gives information, resources and strategies needed by providers to support adolescents and their families to meet the challenges of transition. (80 pages, PDF) Institute for Community Inclusion, University of Massachusetts Boston and Children’s Hospital Boston
- Health Care Transition ResourcesGuidebooks and tools, along with other project educational materials and resources. All materials are available for download and distribution for educational purposes.
Carolina Health and Transition Project (CHAT)
- Supporting the Health Care Transition from Adolescence to Adulthood in the Medical HomeA clinical report from Pediatrics, the official journal of the American Academy of Pediatrics.
American Academy of Pediatrics, American Academy of Family Physicians, and American College of Physicians, Transitions Clinical Report Authoring Group
- Pediatric Perspectives and Practices on Transitioning Adolescents with Special Needs to Adult Health CareBased on a 2008 national survey of practicing pediatricians, this fact sheet examines pediatricians’ perspectives on the appropriate age to begin planning for transition and their practices regarding the provision of transition support services to adolescents with special needs.
National Alliance to Advance Adolescent Health
- Ticket to Work.“It’s fundamentally about the dignity of each human being – about recognizing that work is at the heart of the American Dream.” – President Bill Clinton, December 17, 1999. (14:00 minutes) Institute for Child Health Policy, University of Florida
- Got Transition?Got Transition? is a national resource for health care professionals, families, youth, and state policy makers focusing on a young adult’s transition from pediatric to adult health care. This site serves as the basis for an information exchange about health care transition, particularly as pertaining to youth with special health care needs. Features transition tools and tips and other resources are available under each of the main categories of Youth, Family, Providers and States.
National Health Care Transition Center
- Transition Information and ResourcesPlanning for the transition from pediatric doctors to adult doctors, moving from school to work, and reaching your goals and dreams can be exciting and challenging. The materials included will help guide you as you experience life’s transitions.
Division of Specialized Care for Children, University of Illinois – Chicago
- Transition to AdulthoodAs youth transition to adulthood, there are many things to consider, including health insurance work, school, transportation, housing, and much more. This section provides information for parents and providers so that they can support youth in their growing independence. This section also has information for youth, teens, and young adults to help them learn new skills to be as independent as possible.
Medical Home Portal Project, Department of Pediatrics, University of Utah
- Health Care TransitionsThe mission of the Health Care Transition Initiative at the University of Florida is to increase awareness of, gain knowledge about, and promote cooperative efforts to improve the process transitioning from child-centered (pediatric) to adult oriented health care.
Institute for Child Health Policy, University of Florida
- What has health got to do with transition? Everything!A resource for teens and young adults with special health care needs, chronic illness, physical or developmental disabilities. Includes information for teens/young adults and their families, schools, and health care providers.
Adolescent Health Transitions Project, University of Washington
- Graduating from Pediatric to Adult Health Care
Features a tool box for health care providers, medical education, insurance & financing, service delivery & models of care, and includes information on advocacy and web links.Florida Health and Transition Services (HATS)
- Healthy Transitions: Moving from Pediatric to Adult Health CareThis website is for youth with developmental disabilities ages 14-25 years, family caregivers, service coordinators, and health care providers. Teaches skills and provides tools for care coordination, keeping a health summary, and setting priorities during the transition process. It features video vignettes that demonstrate health transition skills and interactive tools that foster self-determination and collaboration.
New York State Institute for Health Transition Training
- Making the Move to Managing Your Own Personal Assistance ServicesA Toolkit for Youth with Disabilities Transitioning to Adulthood. This new guide assists youth in strengthening some of the most fundamental skills essential for successfully managing their own PAS.
National Collaborative on Workforce and Disability c/o Institute of Educational Leadership, Washington DC
- Youth Transition ToolkitThis free online resource is designed to empower youth with disabilities (ages 12-28+) by providing information to assist in the successful transition to life after high school. It contains valuable information and resources on education, independent living, employment, finances, healthcare, and social and recreational opportunities. Each chapter also contains worksheets and tips for parents.
The California Health Incentives Improvement Project (CHIIP)