The mission of the Region 4 Genetics Collaborative is to:
1) Increase access to information about newborn screening and genetic resources, services and family support systems
2) Facilitate data collection and analysis to guide decision-making regarding screening cut-offs, diagnosis and long term treatment of heritable disorders
3) Support state public health agencies in improving infrastructure for genetic service delivery to children with heritable disorders
4) Provide a forum for families, public health, and clinical providers to share best practices and models for improving newborn screening, follow-up and genetic care coordination
5) Link Region 4 states with regional and national initiatives for improving the quality of newborn screening and genetic service delivery
Click on the workgroup links below to find meeting materials and member lists.
