Endocrine Project Workgroup

Endocrinologists and Region 4 State newborn screening, lab and follow-up programs participate in this project to maximize the effectiveness of newborn screening for CH and CAH by improving detection and management of endocrine cases as part of existing newborn screening and follow-up programs.

Telemeetings

Call 1-866-489-0573 at the prompt enter *4545164*

•Tuesday, May 6, 2008, Data Web Conference

        Combined Meeting Packet
        Agenda
        Document A - Results by Demographics
        Document B - Initial Screening by state-month
        Document C - Region 4 Endo Algorithms
        Document D - NBS False Negative Paper

•Thursday, May 22, 2008, Lansing, MI

        All CAH Surveys
        Adult Enrollment Survey
        Adult Interval Survey
        Infant, Child, and Adolescent Interval Survey
        Infant, Child, and Adolescent Enrollment Survey
        DSD Enrollment Survey
        DSD Interval Survey
        Urogenital Adolescent Adult Survey
        Urogenital Infant Child Survey
        Congenital Adrenal Hyperplasia and Congenital Hypothyroidism: Results of Initial Newborn Screening 2005 and 2006 - Demographics
        Congenital Adrenal Hyperplasia and Congenital Hypothyroidism: Results of Initial Newborn Screening 2005 and 2006 - Screening by State
        Congenital Adrenal Hyperplasia and Congenital Hypothyroidism: Results of Initial Newborn Screening 2005 and 2006 - Algorithms
        Congenital Adrenal Hyperplasia and Congenital Hypothyroidism: Results of Initial Newborn Screening 2005 and 2006 - False Negatives