Medical Home Resources

Children with inherited disorders will have better health outcomes and quality of life if they have access to genetics services, expertise and information within the context of a medical home. In a medical home, a pediatrician or family doctor works in partnership with the child and family to assure that the child has a comprehensive, coordinated care plan.

This website provides information that can be used by doctors and families to access resources necessary to create a medical home for children with inherited disorders.