Photo of paper cut-out people, suggesting a diverse workgroup


From the initial grant cycle in 2004, Region 4 has established a workgroup structure to: 1) share information about current practices; 2) identify barriers
to improving practices; and 3) develop materials, products and systems to improve quality of, and access to, newborn screening and genetic services throughout the Region. Region 4 staff provide research, facilitation and product development services for the groups. The workgroups are chaired by Region 4 members. Below are links to Workgroup sites, files, and resources.

CH 3-year Follow-up

Public Health Long-term Follow-up


RUSP Implementation

Family Health History

Other Workgroups


All newborns will receive state-of-the-art newborn screening and follow-up; children and youth with heritable disorders will have access to genetic expertise and coordinated care in the context of a medical home.

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