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Public Health Long-term Follow-up

Long-term follow-up includes assurance and provision of quality chronic disease management, condition-specific treatment and age-appropriate preventive care throughout the lifespan. The promise of NBS is that it saves lives and improves health. Statewide service systems such as newborn screening, early hearing detection programs, birth defects registries, children with special health care needs and early intervention programs provide opportunities to identify children with heritable disorders and initiate the continuum of follow up activities. The Workgroup builds on efforts currently underway in Region 4 to define a fully-functioning long-term follow-up system and identify questions to be answered by long-term follow-up data, including condition specific questions.

Log-in to the Public Health Long-term Follow-up Workgroup SharePoint site here:
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All newborns will receive state-of-the-art newborn screening and follow-up; children and youth with heritable disorders will have access to genetic expertise and coordinated care in the context of a medical home.

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