Photo of paper cut-out people, suggesting a diverse workgroup

Hemoglobinopathies

The Hemoglobinopathies Workgoup provides a space for families, public health, and clinical providers to share best practices and models for improving newborn screening, follow-up and genetic care coordination for children with hemoglobinopathies and their families. Currently, the Hemoglobinopathies Workgroup is wrapping up their work from the 2007-2012 cycle and will meet during the Regional Meeting in September 2012 to set new priorities.

Vision

All newborns will receive state-of-the-art newborn screening and follow-up; children and youth with heritable disorders will have access to genetic expertise and coordinated care in the context of a medical home.

What's New?