Newly released article in the Journal for Genetics in Medicine on the limited insurance coverage for families of children with inherited metabolic disorders. Region 4 partner, Susan A. Berry is the lead author and researcher.Authored by Susan A. Berry , et al, Insurance Coverage of Medical Foods for Treatment of Inherited Metabolic Disorders.
Region 4 partners and staff recently presented project posters at two national conferences: the American College of Medical Genetics (ACMG) Annual Clinical Genetics Meeting and Association of Maternal and Child Health Programs (AMCHP) Annual Meeting. Posters included:
- Congenital Hypothyroidism Long-term Follow-up Project: Navigating the Rough Waters of a Multi-center, Multi-state Public Health Project (ACMG)
- Effective Collaboration Among State Public Health Programs Promotes Successful Implementation of Long-term Follow-up for Infants Confirmed by Newborn Screening
- Education for Prenatal Care Providers: What You Need to Know about Newborn Screening. (AMCHP)
- Creation of a Transition Resource Web Application (AMCHP)
Stay up-to-date with Region 4 by visiting us on social media: