Families

Photo of team putting hands togetherThe Family Forum is comprised of at least two family members from each state within the region. Topics of discussion include:

  • Developing skills to support active engagement and leadership
  • Using multiple media methods to deliver the family message
  • Identifying/developing tools and resources to help families navigate:
    • health insurance and health exchanges
    • electronic health records, personal health records
    • decisions on health care choices

Log-in to the Family Forum SharePoint site here: https://connect.mphi.org/sites/reg4genetics/default.aspx
If you do not have a user name and password, or have lost your log-in information, please email info@region4genetics.org.

Vision

All newborns will receive state-of-the-art newborn screening and follow-up; children and youth with heritable disorders will have access to genetic expertise and coordinated care in the context of a medical home.

What's New?