2014 Regional Meeting

Meeting materials are now available for download

Receiving A Diagnosis: The Journey from Cope to Hope

Receiving A Diagnosis: The Journey from Cope to Hope

Click on the video above to view Region 4’s newest video “Receiving a Diagnosis: The Journey from Cope to Hope". A special thank you to the Region 4 Midwest Genetics Collaborative family representatives who agreed to be filmed and share their stories.


Affordable Care Act

 Learn more about the Affordable Care Act and Marketplace here.

New tool for emergency departments caring for children with sickle cell

The Family Centered Pediatric Emergency Department Sickle Cell Assessment of Needs and Strengths (FC-Peds-ED-SCANS)© was created to address the complex management of children with sickle cell disease in the emergency department.


Care Coordination

The Care Coordination: Empowering Families training provides parents with the skills, knowledge and resources they need to coordinate care for children with complex needs in partnership with a medical home. For more information, please contact Region 4 Parent Coordinator, Kristen Hawkins at khawkins@mphi.org


Welcome to the Region 4 Genetics Collaborative. We are a collaborative network of families, genetic service providers, newborn screening laboratories, and leaders in public health genetics from Illinois, Indiana, Kentucky, Michigan, Minnesota, Ohio and Wisconsin.


All newborns will receive state-of-the-art newborn screening and follow-up; children and youth with heritable disorders will have access to genetic expertise and coordinated care in the context of a medical home.

What's New?