Mark your calendars for Regional Meeting 2014!

More information will be shared and posted as the date gets closer.

New tool for emergency departments caring for children with sickle cell

The Family Centered Pediatric Emergency Department Sickle Cell Assessment of Needs and Strengths (FC-Peds-ED-SCANS)© was created to address the complex management of children with sickle cell disease in the emergency department.

Care Coordination Training: Empowering Parents

Nearly 60 parents have been trained using the Empowering Parents Curriculum developed by the Care Coordination Workgroup and Family Forum! For more information on these pilot trainings, please contact the Region 4 Parent Coordinator, Kristen Hawkins at khawkins@mphi.org.

Region 4 Current Projects on Display

Region 4 partners and staff recently presented project posters at two national conferences: the American College of Medical Genetics (ACMG) Annual Clinical Genetics Meeting and the Association of Maternal and Child Health Programs (AMCHP) Annual Meeting. Click here to see the poster presentations.

Welcome

Welcome to the Region 4 Genetics Collaborative. We are a collaborative network of families, genetic service providers, newborn screening laboratories, and leaders in public health genetics from Illinois, Indiana, Kentucky, Michigan, Minnesota, Ohio and Wisconsin.

Vision

All newborns will receive state-of-the-art newborn screening and follow-up; children and youth with heritable disorders will have access to genetic expertise and coordinated care in the context of a medical home.